VHL Family Alliance's 20th Anniversary Marked with Fresh New Information Portal
BOSTON, Aug. 20, 2012 — The von Hippel-Lindau Family Alliance (VHLFA), the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, is pleased to announce the launch of its new, user-friendly website, http://www.vhl.org.
The goal of the new site is to provide visitors with easily accessible information regarding research, treatment, and support. In upholding VHLFA's mission to improve diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease, visitors will have the ability to navigate the site to obtain critical, up-to-date information regarding VHL.
"We are proud to release our updated and easy to navigate website," said Camron King, chair of the VHLFA website committee. "The site reflects months of work by members of the VHLFA community and highlights our mission of funding research and educating, supporting, and improving the lives of individuals and families affected by von Hippel-Lindau disease (VHL), kidney cancer, and hereditary cancers."
The VHLFA 20 year anniversary will also be marked with a Fundraising Dinner honoring Founding Executive Director, Joyce Graff and prominent VHL Researcher, Dr. William Kaelin of Dana-Farber Cancer Institute. Proceeds from this event will go towards critical research aimed at identifying a cure to VHL and other tumor-related cancers. To date, the VHLFA has awarded over $1.3M in research grants.
About VHLFA
The VHL Family Alliance (VHLFA), a 510(c)3 non-profit organization founded in Brookline, Massachusetts in 1993, is an international network of family support volunteers, researchers, and medical professionals. VHLFA is the preeminent resource for VHL and related tumor conditions. The VHL gene is a primary player on the path of angiogenesis and thus is one of the keys to understanding cancer. Like us on Facebook, find us on LinkedIn or follow us on Twitter.
For more information about VHL or VHLFA, visit http://www.vhl.org or call 617.277.5667 x4.
For more information, contact:
Ilene Sussman, VHL Family Alliance
617.277.5667 x4
Email
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